Ukusindisa u-Ashley: Iyiphi inani impilo? | I-Adelaide Now -g-icon-error cloudy-day nav_small_right nav_small_right nav_small_right nav_small_right nav_small_right nav_small_right nav_small_right nav_small_right nav_small_right 0A0871E9-1636-49F4-9041-2E36E2BB5333

Uneminyaka emihlanu kuphela ubudala futhi akakwazi ukusho isifo esibulalayo.
Okuwukuphela kwesidakamizwa esingamsindisa sizobiza u-$240 000 ngonyaka, kodwa ubani okufanele akhokhe?
Kuyimpi ekhohlisayo, enamazinyo, umdlwane-
Umfana omncane okhethekile othanda ukuphila.
UGrey ucishe walahla ihinge lomnyango wangaphambili. “Ukhona!
Bheka, ngilahlekelwe izinyo lami lokuqala.
\"Wagxuma esuka onyaweni lwakhe lwesokudla waya kwesobunxele.
Wamamatheka kakhulu kwangathi uhleke kabili.
Esikhathini esingeside esidlule, wathatha isithombe nenkampani yamamodeli wezingane --
Bathole izikhathi ezintathu esithombeni sesithathu esithathwe ezinye izingane.
Ika-Ashley.
Amehlo akhe amakhulu aluhlaza ahlala engawokugcina.
U-Ashley uhlukile kwabanye abahlanu. abaneminyaka yobudala.
Waphathwa isifo esiyingozi esingavamile nesingelapheki.
Ngonyaka wokuqala wokuphila kwakhe, kwacishe kwambulala.
Ulapha manje-
Ephaseji lendlu encane abazali bakhe ababeyiqashile, begxuma bephindelela emoyeni --
Ngenxa nje yosizo lwenkampani eyenza imithi.
Udla izidakamizwa uhulumeni wobumbano angeke azixhase.
U-300 mg awuthola njalo emasontweni amabili izindleko zemoto yomndeni.
$240,000 ngonyaka.
Ungumqemane ngayo.
Ngaphandle kwawo, uzofa ngokugula.
Kulula lokho.
Kodwa iqiniso elibi ukuthi ikusasa lika-Ashley lincike ekuthandeni okuhle kwamazwe ngamazwe.
Noma ipeni le-bureaucratic kanye nokuvuma ngekhanda kosopolitiki.
Ngakho njalo lapho ethatha igolide eliwuketshezi, abazali bakhe bathandazela buthule ukubonga.
Kusasele amasonto amabili indodana eyigugu.
Indlu engaphansi eka-Ashley.
Wayelala ekamelweni elincane nabafowabo ababili.
Baby Ollie embhedeni omncane ekhoneni
I-Lachlan ine-bunk.
Ingubo yokulala ka-Elmo ethambile ilele embhedeni ka-Ashley.
Yaphuma ingubo lapho ethola umqambimanga.
Kungaba ngu-40C ngaphandle-
Ngolunye usuku empumalanga yeMelbourne, uzoyihudulela egumbini lokuphumula.
Azigwebe kusofa.
Kwakuwuphawu lokuqala lokuthi indodana ka-Jason kanye noKerry Gray baphinde balaliswa esibhedlela.
Umuthi awuphuza wawunamaphutha.
Uvame ukungenwa izifo ezinzima futhi uma enomkhuhlane, uya ngqo esibhedlela ukuze ahlole futhi asebenzise inqwaba yemithi elwa namagciwane.
I-Ecullizumab ivimbela ingxenye yamasosha omzimba ekusebenzeni ngokumelene nobuchopho kanye nobuthi begazi.
Abakwazi ukuthatha izingozi lapho kushisa.
Nokho, ngawo, u-Ashley angaguga manje.
Umqondo okhaliphile awukwazi ukuthola indlela yokwelapha i-AHUS, kodwa le ndlela yokwelapha eyingqayizivele ilawula amasosha akhe omzimba kahle.
Iziphathimandla zase-Australia aziyixhasi i-ecullizumab nge-aHUS.
Ngonyaka odlule, yenqatshwa ukuthi ifakwe ohlelweni lwezidakamizwa olusindisa impilo lwase-Australia.
Ayidluli izindinganiso eziqinile.
Lokhu kungase kuphinde kwenzeke uma ithimba longoti futhi ngenyanga ezayo licubungula ukuthi ngabe uNgqongqoshe Wezempilo kufanele elulekwe yini ukuthi agunyaze.
Uma kunjalo, kungashintsha izimpilo zabantu base-Australia abangafika kwabangama-70.
Asikho isiqinisekiso sokuthi u-Alexion uzoqhubeka nokuxhasa ngezimali ukwelashwa kuka-Ashley.
Iziqhwaga zomhlaba zisanda kwenqaba izicelo eziningi ezivela ezigulini zase-Australia ezizwelana nesidingo sazo.
Balindele ukuthi uhulumeni wobumbano aqale ukukhokha.
Uma belindile, abantu baya ngokuya baba buthaka.
Ku-15 cm ukushona ngaphandle kwewindi lehhovisi le-constate e-Steve spinto.
Isimo esingaphansi kweqhwa kanye neBlizzard ngu-6C.
Umfanyana, owasiza ekuguquleni impilo yakhe, manje usegijima ibanga elingamakhilomitha angu-18 000 egqoke izikhindi kanye nezikibha.
U-Ashley ungomunye wamakhulu abantu emhlabeni.
Umuthi usebenza kahle kakhulu futhi ohulumeni emazweni angama-40 baxhasa ngezimali iziguli ze-aHUS.
Abanye bakubiza ngokuthi uSteve Jobs emhlabeni we-biotech.
Kodwa iminyaka, inkampani eyenza imithi ayesebenza
Kungaba ukwehluleka kwezigidigidi ezi-1 zamaRandi.
Lena yindlela i-ecullizumab etshale ngayo.
Ngawo-1990, abacwaningi eNyuvesi yaseYale baqhamuke nendlela engase inqande isimiso somzimba sokuzivikela ezifweni ukuba singadlanga, futhi bagxila ekwelapheni izifo ezinkulu.
Kubonakala sengathi isihambile.
Ngemva kweminyaka emibili nengxenye yokwakha ilebhu encane, akusekho okuzoboniswa.
Eminyakeni eyishumi kamuva, kwaba nokunqoba okulinganiselwe kuphela. Kwakubonakala kubuhlungu.
Kodwa uchwepheshe wegazi waseBrithani waphikelela ngokuthi wayefuna ukusebenzisa i-super
Izifo ezingandile ze-autoimmune ekugcineni sezikhokhe.
Cishe eminyakeni eyishumi ngemva kokuqala kuka-Alexion, impumelelo yafika.
Squinto khumbula kahle kakhulu.
Waqeda isidlo sakhe sokugcina nomkakhe. Lukhale ucingo.
Ikholi evela eBrithani.
Umphumela waphuma.
Iziguli eziyi-11 ocwaningweni ziyathuthuka.
Kube nokugula okukhulu kumabhuleki futhi ithimba le-Alexion laphendukela ekuguleni okungajwayelekile.
Baqala ukuwusebenzisa ezigulini ezine-Ashley syndrome.
Isebenza kahle kakhulu futhi.
U-Squinto wacabanga ukuthengisa inkampani ukuze athole amathuba angcono, kodwa yena nozakwabo
Umsunguli uLeonard Bell unqume ukuxazulula inkinga ngokuphelele.
\"Asizona izandla zangempela-
\"Lolo hlobo lomuntu ,\" esho . \"
Eminyakeni embalwa eyalandela, ngemva kokugunyazwa ukwelashwa kwe-HUS, odokotela abavela kuwo wonke umhlaba bashaya ucingo.
Eminye imindeni inxusa izinkampani ukuthi zibavumele ukuthi babambe iqhaza ezinhlelweni zabo zokupha.
Akekho ongakwazi ukuyikhokhela.
UJoshua Cosman, uchwepheshe wezinso esibhedlela seRoyal Children's Hospital, ungomunye wabo.
Waqala ukuhlangana no-Ashley ngo-2009, owayegula kakhulu.
U-Ashley ungenele ukhetho lwesidakamizwa i-ecullizumab (noma i-Soliris ngoba sesidayisiwe) ngoba usaqhubeka nokuqala futhi, naphezu kwemizamo yabo, usabambekile nakakhulu ekuhlulekeni kwezinso.
UKausman uyakhumbula: "Usesigabeni esibi kakhulu salesi sifo.
Kodwa sisenethuba lokuyihlehlisa nge-ecullizumab.
"Emavikini ambalwa ngemuva kokuqala ukusebenzisa izidakamizwa, isimo sika-Ashley siye saba ngcono.
Ngaphambi konyaka omusha, umdlwane we-Labrador omnyama, u-Diesel, wagabadela onyaweni luka-Ashley emphemeni wangemuva.
Izingane zamnika isipho sikaKhisimusi.
Umfana wagxumela eduze kwakhe, isifiso sikaSanta Claus.
Lokhu kuphezulu ohlwini lwakhe lukaKhisimusi.
Ngenkathi u-Ashley ezama ukusho igama lokugula kwakhe --
I-syndrome ye-atypical lysophanide
Udizili wamluma iqakala.
Washaya u-fal wathi, \"kune-anemia emchameni.
\"Kwakuwumzamo wesibindi, umzamo wezokwelapha kumfana omncane.
Wenza kahle eminyakeni embalwa edlule.
Wakhohlwa ukuthi kwakuwuphawu oluhle.
Sekuyisikhathi eside kakhulu. ukugula kwakhe kudle lo mndeni.
Umama, ubaba kanye nezingane ezinhlanu, okuhlanganisa oSista base-Tahlia kanye nodadewabo bakwa-Mikayla, abahlala nezingane ekamelweni elisendlini yokwamukela izivakashi.
Lesi sifo esingashiwongo asisakhulunywa ngaso.
Manje u-Kerri noJason () bangazazisa izinto ezilula. Futhi benza.
Uchithe usuku lomndeni olwandle nezinja.
Ukukhempa e-RV Park.
Igceke elingemuva eligcwele utshani obuluhlaza.
Umsindo wezinyawo ezincane nomsindo.
Umjiko ukhala emuva naphambili nengane eyodwa noma enye.
UKerri uyamamatheka futhi ugubha usuku lokuzalwa lwendodana yakhe ngezinyembezi.
Ezinhlanu sezidlulile, kodwa leyo migubho ayizange ilahlekelwe ukucwebezela kwayo.
Ukuqala kwempilo yakhe kwakunzima kangangokuthi wayengakholwa nokuthi uzombona okokuqala.
Kubantu base-Australia abafana no-Ashley, ulimi lushintshe yonke into. “Eqinisweni.
\"Ngemva kokubuyekeza, kufakwe ku-standard 4 yohlelo lwezidakamizwa olusindisa impilo ngo-2009.
Lolu wushintsho olukhulu.
Abantu abanezifo ezingavamile bacabanga ukuthi kuyasiza ukuphusha iphrojekthi --
Izidakamizwa ezisindisa impilo
Abakwazi ukuyifinyelela.
Zonke izithembiso kodwa akukho ukulethwa.
I-Standard 4 manje ibeka ukuthi umuthi ungamukelwa ohlelweni, futhi iKomidi Lokweluleka Ngenzuzo Yezidakamizwa kufanele \"libikezele ukuthi impilo yesiguli izonwetshwa kakhulu ngenxa yemiphumela eqondile yokusetshenziswa komuthi".
Emkhakheni wezokwelapha, ukuqina yikho konke.
\"Ukunweba impilo ngokuphawulekayo\" kusho ngempela u-Megan Fox, onesifo esingajwayelekile futhi ocabanga ukuthi igama lenza inqubo ibe nenhloso encane. Okuningi okungaqondakali.
Uphethe amandla akhulayo enkulumo-ze yezifo ezingavamile --
Umsindo ongajwayelekile e-Australia.
U-Ashley ungumuntu oyedwa nje omelwe yiqembu lakhe.
Kodwa kuze kube manje unenhlanhla kunabantu abaningi.
Akungabazeki ukuthi umuthi wakhe wamahhala umnikeza isikhathi eside sokuphila.
Isikhathi eside kakhulu.
Wayeyingane elula kunabo bonke ekuqaleni.
Uhlala elala edla ngendlela efanele.
Injabulo kamama omatasatasa.
Ukugxila kukamama kaKerri kwakwakhelwe odongeni lwendlu yabo
Lapho izingane zingaphansi kwezinyanga ezinhlanu ngesonto, wenza isikhunta ngezandla nezinyawo zomunye nomunye wabo.
Naphezu kokwanda kwenani lamatshwele, konke sekuphelile.
Ezinyangeni ezimbili ngemuva kokuba izinyawo nezandla zika-Ashley zibanjwe ngokhonkolo, waphatheka kabi.
Okuthile kwavusa umuzwa wesithupha ka-Kerri ngeSonto ebusuku, futhi wamyisa esikhungweni sezokwelapha esisha ukuze akhathazeke ngenkinga enkulu.
\"UJason ungicele ukuthi ngimnike umoya bese ngimlalisa.
Umyeni wakhe wahlala eduze kwakhe kusofa wamamatheka enamahloni.
Udokotela wasola ukuthi une-anemia.
Bamcela ukuthi amyise kwabezimo eziphuthumayo esibhedlela iBox Hill.
Igumbi lokubonisana laligcwele izisebenzi zezokwelapha.
Isiphithiphithi, ingxoxo esheshayo, kufakwe amaconsi, abahlengikazi begijima bephethe amathreyi ensimbi engagqwali agcwele izinaliti namashubhu.
Namehlo omusa.
\"Ngiyaqala ngqa ukuya \'Oh, s. .
Lokhu kubucayi, "kusho uKerri.
\"Bamthumela eSibhedlela Sezingane Zasebukhosini ngehora --
Ngesikhathi esifanayo, ngisakhathazeke ngezinto ezincane njengokuthi kufanele ngisiphathe kanjani isilawuli uma ngise-ambulensi.
Ufuna ukwazi ukuthi azibalulekile kangakanani lezi zinto.
I-AHUS yaba yikho konke onyakeni olandelayo.
Ngokushesha lapho ukuxilongwa sekuqinisekisiwe, u-Ashley wathola ukwelashwa okujwayelekile kweziguli ze-aHUS.
Kodwa isebenza kuphela ingxenye.
Wayene-dialysis kanye ne-plasma exchange.
Kodwa ukusebenza kwezinso zakhe kuphansi.
Akubukeki sengathi u-Ashley uzokhula.
Okubaluleke kakhulu kuye ukuthi bazokhokha malini uma yena no-Jason kufanele bakhokhele umuthi owumlingo ukuze bagcine u-Ashley ephila.
Lokhu akunakwenzeka.
Lona umuthi obiza kakhulu eMhlabeni.
Nakuba intengo ibiza, kufanelekile ukucabangela ukuthi wonke umkhokhi wentela e-Australia uzolahlekelwa iphawundi elingu-1 kuphela.
Ukugcina u-Ashley ephila, amasenti ayisishiyagalolunye ngonyaka.
Uma isiguli ngasinye se-aHUS esaziwayo sithola Isibonelelo Sikahulumeni esingu-$2.
Umkhokhintela ngamunye ukhokha kakhulu njalo ngonyaka.
Ngenxa yokuthi ayisebenzi kuso sonke isiguli, kungenzeka ibe ngaphansi kakhulu. Akuningi.
Kodwa kulaba bantu, ukuphila kwabo kuwufanele.
Ubizwa ngokuthi umuthi wezintandane.
Ngokuvamile ayabiza ngoba zenzelwe izimakethe ultra-niche
Iziguli ezinezifo ezingavamile
Yingakho uhlelo lwezempilo lukahulumeni kulula ukulugayeka.
Ngakho bambalwa kakhulu abantu abadinga ukuzisebenzisa.
UMeghan Fox uthe yize uhlelo lwezempilo lwase-Australia selwenze ucwaningo olwengeziwe lwezidakamizwa ngezifo ezingandile, alusekeli impumelelo yazo uma sekuphume imiphumela.
Lokhu kuwuphawu kuye ukuthi leli qembu elincane lezifo ezingavamile libhekwa njengezinga eliphakeme kakhulu labantu besigaba sesibili.
Amathemba akhe ashabalala ngonyaka odlule.
Ukubuyekezwa kwe-LSDP kwamenyezelwa inyanga ngaphambi kokhetho lukahulumeni.
Cishe abantu abangama-20 bathamele ucingo lwengqungquthela.
Izikhulu zomnyango kanye nezithunywa zeziguli ezingavamile, izinkampani zemithi nodokotela.
Kukhona umsindo oqaphile kodwa onika ithemba kulo mugqa.
Kodwa lutho kusukela lapho.
Ayikho i-imeyili, ayikho ifoni.
UFokes usenethemba.
\"Ngiyawamukela amazwana. Siyayidinga.
\"Kufanele abe yilungu lethimba lokubuyekeza.
\"Sikhathazekile ukuthi i-LSDP izoba yimbi kakhulu.
\"Ukuqina kwe-Australia okwaziwayo ocwaningweni lwezokwelapha kubonakala kufaka uxhaso lwezifo ezingavamile enkingeni.
Izidakamizwa zezintandane zivame ukuhluleka ekuhlolweni emisebenzini ngenxa yokuthi inani lezifo ezingavamile lincane kangangokuthi ngokuvamile liyehluleka ukuhlangabezana nezidingo ezinzima ezimbili.
Ukuhlolwa komtholampilo okuyimpumputhe kwemithi yezifo ezivamile.
Udokotela wazama ukuthi uma le ndlela ingayilahli ingane ngamanzi okugeza, yayizosondela.
NoFookes badidekile.
"Ngesizathu esithile, iziguli ezinezifo ezingavamile kufanele zivikele izimpilo zazo.
Abantu abafana no-Ashley abaguli ngenxa yokudla ngokweqile, ukubhema, noma ukusebenzisa izidakamizwa ezingekho emthethweni.
Bazalwa benalesi sifo.
Kepha ngokohulumeni wobumbano, lokhu kuyishwa nje ".
Ngosuku abathola ngalo ukuthi u-Ashley angase ashone, wafika esibhedlela evela emsebenzini kaKelon.
Kungani engalitholanga ithikithi lokugijima ngesivinini esiphezulu? bekuyinhlanhla.
Wayehlezi eduze kukaKerri esibhedlela Sezingane Zasebukhosini futhi uKausman wachaza imiphumela yokuhlolwa.
Kulelo gumbi, uKausman wabatshela okuthile okufana nalokhu: Ingxenye yamasosha omzimba ka-Ashley --
\"Isengezo \"-
Ukubangela isenzo esingalawuleki.
Babengakwazi kanjani?
Mhlawumbe isici sofuzo.
Kubangela ukuba imithambo yegazi ifinyele, ibangele amahlule akhe ihlule, futhi icindezele umoya-mpilo wakhe
Phatha amangqamuzana egazi abomvu ahlukanayo.
Udinga i-dialysis.
Alikho ikhambi.
Lesi sifo siyabulala.
Indodana yabo ingafa.
Kodwa konke uJason Heard kwakuyisiphithiphithi.
Akukho kulokhu okunengqondo.
La mazwi ngeke ashiwo.
\"Ngikhumbula ngihlezi lapho nodokotela ngiphendukela kuKerri ngimbuza,\" Kez, kwenzekeni, \"wavele wakhala wathi,\" Angazi, jase.
Ngangazi ukuthi kwaku serious.
Ngalolo suku, umfana ogula kakhulu wahlolwa yi-Hematology, isifo sezinso, i-immunologist, udokotela ohlinzayo kanye nodokotela wezingane.
Ngaphambi kwehora lesithupha uP. M. , wayehlinza ukuze alungiselele ukukhishwa kwe-dialysis.
Isinxephezelo sokwehluleka kwezinso
UJason usebenzela inkampani kamatilasi ukuze akwazi ukunakekela izingane zabo ezintathu ekhaya.
U-Ollie wazalwa eminyakeni emithathu kamuva.
UKerri no-Ashley bachitha unyaka esibhedlela.
Wayesebenza ekuhloleni umshini ozenzakalelayo amasonto ambalwa ngesikhathi, bese ithulula enqwabeni usuku lonke, ayithathe futhi futhi ayimise kabusha ku-autopilot.
UJason ufana nomzali ongayedwa kwezinye izingane.
Isikhashana, wayekude nomfana ogulayo echibini --amehlo aluhlaza.
\"Ekujuleni kwenhliziyo yami, ngicabanga ukuthi kufanele ngabe nginqumile ukuthi angizange ngisondele. . .
U-Jason waqhaqhazela, \"kuzoba lula ukulahlekelwa nguye.
\"Idatha ayibukeki imuhle kuhulumeni. Kusukela ngo-2009 -
Uma ufaka \"okubalulekile --
Lilodwa kuphela iqembu elisha lezifo elifakwe ohlwini lwabahlomuli bohlelo.
Kunoma yikuphi, iqembu selifinyelele ku-80 ngenqubo yokugunyazwa.
Kuphinde kwengezwe omunye umuthi, kodwa lokhu kuyisibuyekezo sesifo esibikwe ngaphambi kuka-2009.
UDkt. USuzanne Hill, usihlalo weKomidi Lokweluleka Ngezenhlalakahle Yezemithi, unqabile ukuxoxwa naye ngohlelo lwezidakamizwa olusindisa impilo.
Uphendule ngesizotha ukuthi bekungeke kulunge ukuphendula ngisho nemibuzo ejwayelekile nge-ecullizumab --for-
Ilinde isinqumo sika-AHUS
Omele izifo ezingavamile, onqabile ukudalulwa igama, utshele iphephandaba iHerald Sun ukuthi umhlangano noHill umcikile kakhulu.
\"Ubebonakala ezwelana nathi lapho ezwa esasikusho.
Kodwa ekugcineni, wathi, \"kudingeka ukhulume nalabo sombangazwe, hhayi mina . \"
UKerri Grey, owasungula iqembu lokusekela i-aHUS e-Australia, ukholelwa ukuthi uhulumeni angasebenzisa imali eningi, kodwa hhayi.
Idatha yedola isibekelwe amaphrojekthi abanzi.
\"Isu liyisidingo --
Shayela njengoba kudingeka, "uProfessor Chris Baggoley, isikhulu sezokwelapha, kusho i-imeyili ephendula isicelo senhlolokhono.
Umqondo walolu hlelo ukuvumela ukufinyelela ekwelashweni kwezifo ezingavamile okuhlosiwe okuhlosiwe okungakwazi ukudlula izindleko zokuhlolwa kwenzuzo yohlelo Lwezinzuzo Zemithi.
UFokes uthi inhloso ebalulekile ihlanjululwe ngokuhamba kwesikhathi.
\"Njengoba yanda imishanguzo yokwelapha izifo ezingavamile, kuya kuba nzima ukuzifaka ohlwini," kusho yena. \".
\"Ngicabanga ukuthi bafuna ukwehlisa iphrojekthi, kodwa empeleni bayivimbile endleleni yayo.
Abazali bakhe babona ukuthi useduze kangakanani newa.
Ngaphambi kukaKhisimusi, uKerri wahlangana ngokuhlanya nomama waseQueensland.
Uvame ukuzwa indaba ka-Ashley ngaphandle kwe-ecullizumab.
U-Bianca Scott ulele embhedeni wasesibhedlela eGold Coast.
Wenza i-dialysis amahora amaningi ngosuku ukuze abhekane nezinso zakhe ezingasebenzi kahle.
Unokufakwa esikhundleni se-plasma ezama ukuvala amasosha omzimba akhe ahlanyayo.
Ukwelashwa akusebenzi.
Emasontweni amathathu edlule, umama wakhe uTami Hamawi walalela indodakazi yakhe.
Amaphaphu akhe ayegcwele umoya ngesikhathi elele.
Into agcina ukuyicabanga ngalobo busuku cishe kwakuwukulahlekelwa ingane yakhe okuwukuphela kwayo.
U-Bianca wayene-HUS lapho eseyingane, kodwa kwavele kwadamba.
Uma ebheka emuva kwezinye zezithombe zakhe zokuthweswa iziqu ngo-Okthoba, wayebukeka ephaphathekile futhi ependwe kahle.
Lesi yisiqalo sokwehla kwakhe ngokushesha.
Umndeni wakwaBianca unalesi sifo.
Ezinye izihlobo ezabulawa yisifo sezinso emashumini eminyaka edlule manje sezaziwa ukuthi zibangelwa i-AHUS.
I-Ecullizumab ingaphezu kwamandla ezingane.
Wacela isaphulelo ku-Alexion kodwa wenqaba.
Uchwepheshe wezinso wamtshela ukuthi u-Bianca wayesenezinyanga ezimbili ngaphambi kokuba umonakalo wakhe wezinso ungalungiseki.
Manje uzama ukuthola izinkulungwane zamaRandi impilo yentombazane yakhe.
Ochwepheshe bacabanga ukuthi, osopolitiki bayalibazisa, kodwa izingane zithanda amaslayidi akhe.
UTammy usenethemba lokuhle.
Unethemba lokuthi u-Bianca angaba ngumuntu wokuqala emndenini wakhe ukwephula isiqalekiso sika-AHUS.
Kodwa uphelelwa yisikhathi.
Likhona ithemba.
Imicibisholo ngaphambili nasekhoneni lephaseji lesibhedlela Sezingane Zasebukhosini.
Lapho unina ephinda emthola, wayesesondele kakhulu, ehlisa udebe lwangezansi futhi ekhombisa igebe emazinyweni akhe kumhlanzi owaqothuka exoxa.
Uthole u-$5 ngakho.
Kukhona nenye exegayo eduze kwayo.
U-$10 nje ngesonto.
Abasebenzi be-RCH babone u-Ashley ewela emgodini ngokugula kwakhe, umsunguli wokwelapha okuhlaselayo, wabe esebuya nesidakamizwa sakhe esingu-$9000 --a-dose.
Ukuvakashela inganekwane yezinyo ukuzwa isiguli sabo esincane kuyashisa.
Izingane kufanele zibe nomoya owanele wokugubha lezi zinto ezincane.
Omunye umhlengikazi wathi lapho u-Ashley efakwa njalo ngemva kwamasonto amabili, bathanda ukubhaliswa.
Akukho ukuphikisana.
Wamamatheka T-
Ihembe, vumela ukuvuza kuxhume ku-portacath yakhe, ngaphansi kwesikhumba ohlangothini lwesobunxele lwenhliziyo yakhe.
Akakwazi okuningi ngesifo sakhe.
"Umuthi okhethekile" wakhe uyingxenye yempilo, njengokudla imifino esidlweni sakusihlwa nokuxubha amazinyo.
Akazi ukuthi abazali bakhe baseduze kangakanani nokulahlekelwa nguye.
Akazi ukuthi impilo yakhe inenani elingakanani. Akufanele futhi.
Kunalokho, u-Ashley Gray wazumeka esihlalweni sakhe semoto esendleleni egodukayo evela esibhedlela.
Ikhanda lakhe litshekele eceleni.
Lapho ekhula, wayefisa ukuba ihlengethwa, umdlwane we-Iping kanye neziphethu ze-Slinky.
Futhi uzosebenzisa kanjani i-$ 10 engcebweni