Ukusindisa u-Ashley: Liliphi ixabiso lobomi? | Adelaide Ngoku -g-icon-error cloudy-day nav_small_right nav_small_right nav_small_right nav_small_right nav_small_right nav_small_right nav_small_right nav_small_right nav_small_right 0A0871E9-1636-49F4-9041-2E36E2BB5333

Uneminyaka emihlanu kuphela ubudala kwaye akakwazi ukuchaza isifo esibulalayo.
Ekuphela kweyeza elinokumsindisa liya kuxabisa ii-$240 000 ngonyaka, kodwa ngubani ofanele ahlawule?
Lidabi elibukhali, linamazinyo, injana-
Inkwenkwe encinci ekhethekileyo ethanda ukuphila.
UGrey uphantse walahla ihenjisi yocango lwangaphambili. “Ukho!
Jonga ndilahlekelwe lizinyo lam lokuqala.
"Watsiba ukusuka kunyawo lwakhe lwasekunene ukuya ngasekhohlo.
Wancuma encuma ngathi uhleke kabini.
Kungekudala, wathatha umfanekiso kunye ne-arhente yemodeli yabantwana --
Bafumana kathathu kwifoto yesithathu ethathelwe abanye abantwana.
NguAshley's.
Amehlo akhe amakhulu aluhlaza ahlala engawokugqibela.
UAshley wahlukile kwabanye abahlanu. abaneminyaka ubudala.
Wahlaselwa sisifo esibulalayo esingaqhelekanga nesingenakunyangeka.
Kunyaka wokuqala wobomi bakhe, yaphantse yambulala.
Ulapha ngoku-
Kwipaseji yendlu encinci abazali bakhe ababeyiqeshile, betsibela phezulu emoyeni--
Nje ngenxa yoncedo lwenkampani yoxubo mayeza.
Usela amayeza angayi kuxhaswa ngurhulumente.
I-300 mg ayifumana rhoqo kwiiveki ezimbini yindleko yemoto yentsapho.
$240,000 ngonyaka.
Usempilweni ngayo.
Ngaphandle kwayo, uya kufa egula.
Ilula loo nto.
Kodwa inyaniso eyoyikekayo yeyokuba ikamva lika-Ashley lixhomekeke ekuthandeni abantu bamazwe ngamazwe.
Okanye ipeni ye-bureaucratic kunye nentloko yezopolitiko.
Ke ngalo lonke ixesha ethatha igolide engamanzi, abazali bakhe bathandaza ngokuthe cwaka becela umbulelo.
Kusele iiveki ezimbini ukuba unyana oxabisekileyo.
Ibhedi esezantsi yiAshley\'s.
Wayehlala kwigumbi elincinane lokulala nabakhuluwa bakhe ababini.
Umntwana u-Ollie kwibhedi encinane ekoneni
ILachlan inebhedi.
Ingubo ka-Elmo eguquguqukayo ilele ebhedini ka-Ashley.
Yaphuma ingubo xa efumana ixoki.
Inokuba yi-40C ngaphandle-
Ngenye imini kwimpuma yeMelbourne, uya kuyitsalela kwigumbi lokuphumla.
Ndizisongele esofeni.
Yayiluphawu lokuqala lokuba unyana kaJason noKerry Gray bangeniswe esibhedlele kwakhona.
Iyeza awayelithabathile lalinamakhwiniba.
Utyekele ekubeni nosulelo oluqatha yaye ukuba unomkhuhlane, uya ngqo esibhedlele ukuze ahlole aze asebenzise amayeza okubulala iintsholongwane amaninzi.
I-Ecullizumab ikhusela inxalenye ye-immune system ekusebenzeni ngokuchasene nengqondo kunye netyhefu yegazi.
Abanakuthatha imingcipheko ebushushwini.
Noko ke, ngayo, uAshley unokuluphala ngoku.
Ingqondo ekrelekrele ayinakuyifumana indlela yokunyanga i-AHUS, kodwa le ndlela yonyango ikhethekileyo ilawula amajoni akhe omzimba kakuhle.
Abasemagunyeni base-Australia abayixhasi i-ecullizumab kwi-AHUS.
Kunyaka odlulileyo, laye lakhatywa ukubandakanywa kwinkqubo ye-Australia esindisa ubomi.
Ayigqithisi imigangatho engqongqo.
Oku kusengenzeka kwakhona xa iqela leengcaphephe kwakhona kwinyanga ezayo liqwalasela ukuba uMphathiswa wezeMpilo kufuneka acetyiswe kusini na ukuba avume.
Ukuba kunjalo, inokutshintsha ubomi babantu abangama-70 baseOstreliya.
Akukho siqinisekiso sokuba i-Alexion iyakuqhuba ixhasa ngemali unyango luka-Ashley.
Izigebenga zehlabathi kutshanje zalile izicelo ezininzi ezivela kwizigulana zaseOstreliya ezinovelwano ngesidingo sabo.
Balindele urhulumente wobumbano ukuba aqalise ukuhlawula.
Xa belindile, abantu baya besiba buthathaka.
15 cm ubunzulu ngaphandle kwefestile yeofisi eSteve spinto.
Imeko engaphantsi kweqondo lomkhenkce kunye neBlizzard yi-6C.
Inkwenkwe encinci, eyancedayo ekutshintsheni ubomi bayo, ngoku ibaleka malunga ne-18,000 km ukusuka mgama ngeebhulukhwe ezimfutshane kunye nezikipa.
UAshley ngomnye wamakhulu abantu ehlabathini.
Ichiza lisebenza kakuhle kakhulu kwaye oorhulumente kumazwe angama-40 baxhasa ngemali izigulane ze-AHUS.
Abanye bayibiza ngokuba nguSteve Jobs kwihlabathi le-biotech.
Kodwa kangangeminyaka, inkampani yamayeza awayesebenza kuyo
Kungaba ukungaphumeleli kwe-1 yeebhiliyoni zeedola.
Yimalini etyalwe yi-ecullizumab.
Ngeminyaka yee-1990, abaphandi kwiYunivesithi yaseYale beza nendlela enokubakho yokunqanda amajoni omzimba ukuba agqugqise, kwaye bajika ingqalelo yabo ekunyangeni izifo ezikhulu.
Kubonakala ngathi imkile.
Emva kweminyaka emibini enesiqingatha yokwakha ilebhu encinci, akusekho nto ibonisa.
Kwiminyaka elishumi kamva, kwabakho uloyiso olulinganiselweyo. Yayikhangeleka imbi.
Kodwa ingcali ngegazi yaseBritani yagxininisa kwelokuba ifuna ukusebenzisa isixhobo esinamandla
Izifo ezinqabileyo ze-autoimmune ekugqibeleni zihlawule.
Phantse ishumi leminyaka emva kokuba u-Alexion eqalile, impumelelo yafika.
Squinto khumbula ngokucacileyo kakhulu.
Wagqiba isidlo sakhe sangokuhlwa kunye nomfazi wakhe. Yakhala ifowuni.
Ifowuni evela eBritane.
Isiphumo saphuma.
Izigulane ezili-11 kulingo ziyaphucuka.
Kwakukho ukugula okukhulu kwiibhuleki kwaye iqela lase-Alexion lajika ingqalelo kwisifo esinqabileyo.
Baqala ukuyisebenzisa kwizigulana ezine-Ashley syndrome.
Isebenza kakuhle kakhulu nayo.
U-Squinto wacinga ukuthengisa inkampani ngenxa yethemba eliqaqambileyo, kodwa yena kunye noogxa bakhe
Umseki uLeonard Bell wagqiba ekubeni asombulule ingxaki ngokupheleleyo.
\"Asizozandla zokwenyani-
Wathi . \"
Kwiminyaka embalwa elandelayo, emva kokuvunywa kunyango lwe-AHUS, oogqirha abavela kwihlabathi liphela bafowunela.
Ezinye iintsapho zicela iinkampani ukuba zibavumele ukuba bathathe inxaxheba kwiinkqubo zabo zesisa.
Akukho mntu unako ukuyifikelela.
UJoshua Cosman, ingcali yezintso kwiSibhedlele saBantwana baseRoyal, ngomnye wabo.
Waqala ukudibana no-Ashley ngo-2009, owayegula kakhulu.
U-Ashley ngumgqatswa wechiza i-ecullizumab (okanye i-Soliris ngenxa yokuba ithengisiwe) kuba uyaqhubeka nokuqalisa kwaye, ngaphandle kwemigudu yabo, ubambekile ngakumbi kukusilela kwezintso.
UKausman ukhumbula oku: "Ukwinqanaba elibi kakhulu lesi sifo.
Kodwa sisenalo ithuba lokuyibuyisela umva nge-ecullizumab.
Kwiiveki ezimbalwa emva kokuba eqalise ukusebenzisa iziyobisi, imeko ka-Ashley iye yaphucuka.
Phambi konyaka omtsha, injana yeLabrador emnyama, iDisel, yagqabaza kunyawo luka-Ashley kumgangatho ongasemva.
Abantwana bampha isipho ngeKrismesi.
Inkwenkwe yatsibela ngakuye, inqwenela uSanta Claus.
Oku kuphezulu kuluhlu lwakhe lweKrisimesi.
Xa uAshley wayezama ukucengceleza igama lesigulo sakhe--
I-syndrome ye-atypical lysophanide
Idizili yamluma iqatha.
Wabetha u-fal wathi, "kukho i-anemia emchameni.
"Yayingumzamo wenkalipho, umzamo wonyango kumfana omncinci.
Wenza ngokugqibeleleyo kwiminyaka embalwa edlulileyo.
Walibala ukuba luphawu oluhle.
Ibinde kakhulu. isigulo sakhe siyilahlekele le ntsapho.
Umama, utata kunye nabantwana abahlanu, kuquka oodade baseTahlia kunye noosisi bakwa Mikayla, abahlala nabantwana kwigumbi lokungena.
Esi sifo singachazwanga asisathethwa ngaso.
Ngoku uKerri noJason () banokuxabisa izinto ezilula. Kwaye benza njalo.
Sichithe usuku losapho elunxwemeni nezinja.
Inkampu kwiRV Park.
Ngasemva kwendlu ezele yingca eluhlaza.
Ingxolo yeenyawo ezincinci kunye nesandi.
Ujingi uyancwina ngapha nangapha nomntwana omnye okanye omnye.
UKerri uyancuma kwaye ubhiyozela usuku lokuzalwa lonyana wakhe ngeenyembezi.
Emihlanu sele idlulile, kodwa loo mibhiyozo ayiphulukananga nokubengezela kwayo.
Isiqalo sobomi bakhe sasinzima kangangokuba wayengakholelwa ukuba uya kumbona okokuqala.
Kubantu baseOstreliya abafana noAshley, ulwimi lutshintshe yonke into. “Ngokuqinisekileyo.
\"Emva kokuphonononga, iye yafakwa kumgangatho wesi-4 wenkqubo yechiza elisindisa ubomi ngo-2009.
Olu lutshintsho olukhulu.
Abantu abanezifo ezinqabileyo bacinga ukuba iyanceda ukutyhala iprojekthi --
Iziyobisi ezisindisa ubomi
Abanakukwazi ukufikelela kuyo.
Zonke izithembiso kodwa akukho ukunikezelwa.
Umgangatho wesi-4 ngoku uchaza ukuba ichiza linokwamkelwa yiprogram, kwaye i-Drug Benefit Advisory Committee kufuneka "iqikelele ukuba ubomi besigulane buya kwandiswa kakhulu ngenxa yeziphumo ezithe ngqo zokusetyenziswa kwechiza".
Kwintsimi yezonyango, ubukhali yinto yonke.
\"Ukwandisa ubomi kakhulu\" ngokwenene kuthetha uMegan Fox, onesifo esinqabileyo kwaye ucinga ukuba igama lenza inkqubo ingabi yinjongo. Iyadida ngakumbi.
Uphethe amandla akhulayo okusasaza izifo ezinqabileyo--
Isandi esinqabileyo e-Australia.
U-Ashley ngumntu omnye omelwe liqela lakhe.
Kodwa ukuza kuthi ga ngoku unethamsanqa kunabantu abaninzi.
Alithandabuzeki elokuba iyeza lakhe lasimahla limnika ubomi obude.
Ixesha elide kakhulu.
Wayengoyena usana olulula ekuqaleni.
Uhlala elala kwaye atye njengoko kufanele.
Ulonwabo lukamama oxakekileyo.
Ugxininiso lukamama kaKerri lwakhiwe eludongeni lwekhaya labo
Xa abantwana bengaphantsi kweenyanga ezintlanu ngeveki, wayebumba ngezandla neenyawo zomntu ngamnye kubo.
Nangona ukwanda kwamantshontsho, yonke into iphelile.
Kwiinyanga ezimbini emva kokuba iinyawo nezandla zika-Ashley zibanjwe ngodaka, wakhathazeka.
Kukho into ebangele ukuba uKerri abe noluvo lwesithandathu ngobusuku beCawa, kwaye wamsa kwiziko elitsha lezonyango ukuze akhathazeke ngengxaki enkulu.
"UJason wandicela ukuba ndimnike umoya kwaye ndimlalise.
Umyeni wakhe wahlala ecaleni kwakhe esofeni wancuma enentloni.
Ugqirha jikelele warhanela ukuba uneanemia.
Bamcela ukuba amse kwisebe likaxakeka kwisibhedlele saseBox Hill.
Igumbi lokubonisana lalizele ngabasebenzi bezonyango.
Isiphithiphithi, incoko ekhawulezileyo, amathontsi afakiweyo, abongikazi bebaleka bejikeleza ngeetreyi zentsimbi ezingenasici ezigcwele iinaliti kunye neetyhubhu.
Namehlo enceba.
\"Esi sisihlandlo sokuqala ukuba \'Owu, s. .
Oku kunzulu, "utshilo uKerri.
"Bamthumela kwiSibhedlele saBantwana baseRoyal ngeyure --
Kwangaxeshanye, ndisenexhala lezinto ezincinci ezinje ngokuba mandiyiphathe njani istroller xa ndikwi ambulensi.
Ufuna ukwazi ukuba ezi zinto zingabalulekanga kangakanani na.
U-AHUS waba yinto yonke kunyaka olandelayo.
Ngokukhawuleza nje ukuba uxilongo luqinisekisiwe, u-Ashley wafumana unyango lwesiqhelo lwezigulane ze-AHUS.
Kodwa isebenza kuphela ngokuyinxenye.
Wayene-dialysis kunye ne-plasma exchange.
Kodwa ukusebenza kwezintso zakhe kuphantsi.
Akubonakali ngathi uAshley uza kukhula.
Eyona nto ibalulekileyo kuye kukuba baya kuyihlawula malini na ukuba yena noJason kufuneka bahlawule iyeza lomlingo ukuze bagcine uAshley ephila.
Oku akunakwenzeka.
Eli lelona chiza libiza kakhulu eMhlabeni.
Nangona ixabiso liyabiza, kuyafaneleka ukuqwalasela ukuba wonke umhlawuli werhafu e-Australia uya kuphulukana neponti enye kuphela.
Ukugcina u-Ashley ephila, iisenti ezilithoba ngonyaka.
Ukuba isigulane ngasinye se-aHUS sifumana iSibonelelo se-$2.
Umhlawuli werhafu ngamnye uhlawula kakhulu ngonyaka.
Ngenxa yokuba ayisebenzi kuso sonke isigulana, kunokwenzeka ukuba ibe ngaphantsi kakhulu. Ayininzi.
Kodwa kwaba bantu, ubomi babo bufanelekile.
Libizwa ngokuba liyeza leenkedama.
Ngokuqhelekileyo zibiza kakhulu kuba ziphuhliselwe iimarike ze-ultra-niche
Izigulane ezinezifo ezinqabileyo
Yiyo loo nto inkqubo yezempilo karhulumente kulula ukwetyisa.
Ngoko bambalwa kakhulu abantu abafuna ukuzisebenzisa.
U-Meghan Fox uthe nangona inkqubo yezempilo yase-Australia iqhube uphando oluninzi lweziyobisi kwizifo ezinqabileyo, ayixhasi impumelelo yabo xa iziphumo ziphuma.
Olu luphawu kuye lokuba eli qela lincinci lesifo esinqabileyo lithathwa njengelona nqanaba liphezulu labantu abakudidi lwesibini.
Amathemba akhe atshabalala kunyaka ophelileyo.
Ukuphononongwa kwe-LSDP kwabhengezwa kwinyanga ngaphambi konyulo lomanyano.
Bamalunga nama-20 abantu abebezimase ubizo lwenkomfa.
Amagosa eSebe kunye nabathunywa bezigulane ezinqabileyo, iinkampani zamachiza kunye noogqirha.
Kukho i-buzz elumkileyo kodwa enika ithemba kulo mgca.
Kodwa akukho nto ukususela ngoko.
Akukho imeyile, akukho fowuni.
OoFokes basenethemba.
"Ndiyazamkela izimvo. Siyayidinga.
"Kufuneka abe lilungu leqela lophononongo.
"Sinexhala lokuba i-LSDP iya kuba mandundu.
\"Ukuqina okwaziwayo eOstreliya kuphando lwezonyango kubonakala kubeka ingxaki ngemali yezifo ezinqabileyo.
Iziyobisi zeenkedama zihlala zisilela kuvavanyo lweeprojekthi ngenxa yokuba inani labantu bezifo ezinqabileyo lincinci kangangokuba bahlala besilela ukuhlangabezana nezidingo ezimbini ezinzima.
Ulingo lweklinikhi oluyimfama lwamachiza ezifo eziqhelekileyo.
Ugqirha wazama ukuba ukuba le ndlela ayilahli umntwana ngamanzi okuhlamba, iya kusondela kwaye isondele.
Kwaye ooFokes babhidekile.
"Ngesizathu esithile, abaguli abanezifo ezinqabileyo kufuneka bakhusele ubomi babo.
Abantu abafana noAshley abaguli kukutya ngokugqithisileyo, ukutshaya, okanye ukusebenzisa iziyobisi ezingekho mthethweni.
Bazalwa benesi sifo.
Kodwa ngokubhekisele kurhulumente wobumbano, oku kulishwa elibi ".
Ngosuku abafumanisa ngalo ukuba uAshley angabhubha, wafika esibhedlele evela emsebenzini kaKelon.
Kutheni engazange alifumane itikiti lokubaleka? ibe lithamsanqa.
Wayehleli ecaleni kukaKerri kwiSibhedlele saBantwana baseRoyal kwaye uKausman wachaza iziphumo zovavanyo.
Kwela gumbi, uKausman wabaxelela into enje: Inxalenye ye-immune system ka-Ashley --
\"Isongezelelo \"-
Ukubangela isenzo esingalawulekiyo.
Babenokungazi njani?
Mhlawumbi sisiphene semfuza.
Ibangela ukuba imithambo yegazi ikrune, ibangele ukuba iiplatelets zenze ihlwili, yaye ibeka uxinzelelo lwasemzimbeni kwioksijini yakhe
Phatha iiseli ezibomvu zegazi eziqhekekayo.
Ufuna i-dialysis.
Alukho unyango.
Esi sifo siyabulala.
Unyana wabo unokufa.
Kodwa yonke into kaJason Heard yayiyisiphithiphithi.
Akukho nanye kule nto inengqiqo.
La mazwi awayi kuthethwa.
"Ndikhumbula ndihleli noGqirha ndijikela kuKerri ndimbuza,"Kez kwenzeke ntoni, "wavele walila wathi,"Andazi jase.
Ndandiyazi ukuba inzulu.
Ngaloo mini, inkwenkwe egula kakhulu yavavanywa yi-Hematology, isifo sezintso, i-immunologist, ugqirha wotyando kunye nogqirha wabantwana.
Ngaphambi kwentsimbi yesithandathu uP. M. , wayesenza utyando ukulungiselela i-dialysis.
Imbuyekezo yokusilela kwezintso
UJason usebenzela inkampani yoomatrasi ukuze akwazi ukunyamekela abantwana babo abathathu ekhaya.
UOllie wazalwa kwiminyaka emithathu kamva.
UKerri noAshley bachitha unyaka esibhedlele.
Wayesebenza kwi-autopilot iiveki ezimbalwa ngexesha, emva koko yayigalela kwimfumba yosuku, ayichole kwakhona kwaye ayibuyisele kwi-autopilot.
UJason ufana nomzali ongenaqabane kwabanye abantwana.
Ngexesha elithile, wayemgama ukusuka kwinkwenkwe egulayo equleni --amehlo aluhlaza.
"Entliziyweni yam, ndicinga ukuba kufuneka ndithathe isigqibo sokuba andisondelanga. . .
UJason wangcangcazela, \"kuya kuba lula ukuphulukana naye.
\"Idatha ayibonakali ilungile kurhulumente. Ukusukela ngo-2009-
Xa ufaka \"okubalulekileyo --
Linye kuphela iqela elitsha lesifo elongeziweyo kuluhlu lwabaxhamli bale nkqubo.
Kwimeko nayiphi na into, iqela lifikelele kwi-80 ngenkqubo yokuvunywa.
Elinye iyeza nalo longeziwe, kodwa olu luhlaziyo lwesifo esixelwe phambi ko-2009.
UGqr. USuzanne Hill, usihlalo weKomiti yeeNgcebiso ngeNtlalontle yamayeza, akavumanga udliwano-ndlebe ngesicwangciso samachiza esisindisa ubomi.
Uphendule ngokuthobekileyo ukuba akuyi kufaneleka ukuphendula imibuzo ngokubanzi nge-ecullizumab --for-
Ilinde isigqibo sika-AHUS
Ummeli wezifo ezinqabileyo, oye walile ukuchazwa, uxelele i-Herald Sun ukuba intlanganiso kunye no-Hill yayikhathaza kakhulu.
\"Wayengathi uyavelana nathi akuva into esasiyithetha.
Kodwa ekugqibeleni, wathi, "kufuneka uthethe nabo bezopolitiko, hayi nam. \"
UKerri Grey, owaseka iqela lenkxaso ye-AHUS e-Australia, ukholelwa ukuba urhulumente unokuchitha imali eninzi, kodwa akunjalo.
Idatha yeDola iye yagutyungelwa ziiprojekthi ezibanzi.
\"Isicwangciso siyimfuneko --
Qhuba njengoko kufuneka, "UNjingalwazi uChris Baggoley, igosa eliyintloko lezonyango, uthe kwi-imeyile ephendula isicelo sodliwanondlebe.
Umbono wenkqubo kukuvumela ukufikelela kunyango olujoliswe kuyo lwezifo ezinqabileyo ezingenakukwazi ukudlula iindleko zovavanyo lweNzuzo yeNzuzo yoPhando lweProgram.
UFokes uthi injongo exabisekileyo iye yahlanjululwa ngokuhamba kwexesha.
\"Njengokuba esanda amachiza okunyanga izifo ezinqabileyo, kuya kuba nzima ukuwadwelisa," utshilo. \".
"Ndicinga ukuba bafuna ukucothisa iprojekthi, kodwa ngokusisiseko bayivale kumkhondo wayo.
Abazali bakhe babona indlela awayesondele ngayo kweliwa.
Ngaphambi kweKrisimesi, uKerri wayenonxibelelwano oluphambeneyo nomama waseQueensland.
Uhlala esiva ibali lika-Ashley ngaphandle kwe-ecullizumab.
U-Bianca Scott ulele kwibhedi esibhedlele eGold Coast.
Wenza i-dialysis iiyure ngosuku ukuze ajongane nezintso zakhe ezingasebenziyo.
Uneplasma endaweni ezama ukuvala amajoni akhe aphambeneyo.
Unyango alusebenzi.
Kwiiveki ezintathu ezidlulileyo, umama wakhe uTami Hamawi wamamela intombi yakhe.
Imiphunga yakhe yayizele ngumoya ngelixa wayelele.
Into yokugqibela awayicingayo ngobo busuku yayikukulahlekelwa ngumntwana okuphela kwakhe.
U-Bianca wayene-HUS eselusana, kodwa ngokukhawuleza yakhululeka.
Xa ejonga emva kwezinye zeefoto zakhe zothweso-zidanga ngo-Okthobha, wayekhangeleka ephaphatheka kwaye epeyintwe kakuhle.
Esi sisiqalo sokuhla kwakhe ngokukhawuleza.
Usapho lakwaBianca lunesi sifo.
Ezinye izalamane ezabulawa sisifo sezintso kumashumi eminyaka eyadlulayo ngoku zaziwa ngokuba zibangelwa yi-AHUS.
I-Ecullizumab ingaphaya kwabantwana.
Wacela isaphulelo ku-Alexion kodwa wala.
Ingcali yezintso yamxelela ukuba u-Bianca wayeneenyanga ezimbini ngaphambi kokuba umonakalo wakhe wezintso ungalungiseki.
Ngoku uzama ukufumana amawaka eedola ubomi bentombazana yakhe.
Iingcali zicinga ukuba, abezopolitiko bayalibazisa, kodwa abantwana bayazithanda izilayidi zakhe.
UTammy usenethemba.
Unethemba lokuba uBianca inokuba ngumntu wokuqala kusapho lwakhe ukwaphula isiqalekiso sika-AHUS.
Kodwa uphelelwa lixesha.
Kukho ithemba.
IiDarts ngaphambili nakwikona yepaseji yesibhedlele saBantwana baseRoyal.
Xa unina wamfumana kwakhona, wayengqiyame kakhulu, ehlisa umlebe wakhe ongezantsi kwaye ebonisa isithuba esisemazinyweni akhe kumntu ococekileyo owathi tywa phantsi ukuze ancokole.
Ufumene i-$5 ngayo.
Kukho nekhululekileyo ecaleni kwayo.
I-$ 10 nje ngeveki.
Abasebenzi be-RCH babone u-Ashley ewela emkhombeni ngesigulo sakhe, umseki wonyango oluhlaselayo, emva koko wabuyela umva nge-9000 yeedola --idosi yeyeza.
Ukutyelela kwintsomi yezinyo ukuva isigulana sabo esincinci kuyafudumala.
Abantwana kufuneka babe nomoya owaneleyo wokubhiyozela ezi zinto zincinci.
Omnye umongikazi wathi xa uAshley etofelwa rhoqo emva kweeveki ezimbini, bayathanda ukufakwa kuluhlu.
Akukho ngxabano.
Uye wancuma T-
Ihempe, vumela idriphu idibanise kwi-portacath yakhe, kanye phantsi kwesikhumba kwicala lasekhohlo lentliziyo yakhe.
Akukho nto ingako aziyo ngesigulo sakhe.
"Iyeza elikhethekileyo" lakhe yinxalenye yobomi, njengokutya imifuno ngesidlo sangokuhlwa kunye nokuhlamba amazinyo.
Akayazi ukuba abazali bakhe basondele kangakanani ekuphulukaneni naye.
Akayazi ukuba ubomi bakhe buxabiseke kangakanani. Naye akafanele.
Endaweni yoko, u-Ashley Gray walala kwisitulo sakhe semoto xa esendleleni egodukayo evela esibhedlele.
Intloko yakhe ithekele kwelinye icala.
Xa ekhulile, wayephupha ngokuba yi-dolphin, injana ye-Iping kunye nemithombo ye-Slinky.
Kwaye uya kuchitha njani i-10 yeedola kubutyebi